At the Tarlov Cyst Association we recognize that privacy is important. This Policy applies to all of the products, services and websites offered by the Tarlov Cyst Association  (collectively, the Tarlov Cyst Association's "services").

If you have any questions about this Policy, please feel free to contact us.

Information we collect and how we use it:

We collect information as follows:

    * Information you provide - If you register for to member's-only content the information, we save that information.

      
    * Log information - When you use the Tarlov Cyst Association website, our servers automatically record information that your browser sends whenever you visit a page. The purpose is to see how often a page is visited and how much time users spend on a page.

      
    * User communications - When you send email or other communication to the Tarlov Cyst Association, we may retain those communications in order to process your inquiries, respond to your requests and improve our services.

      
    * Medical surveys - One of our services is to provide surveys of the outcomes of medical procedures of members.  These surveys may consist of copies of messages that you post to one of our forums. We may include your first name in the survey. Although we attempt to remove other personal identifying information,. if you included such information in a message to one of our forums, we are not responsible for removing it from copies used in our surveys.  However, we will remove any such information upon request.

      
    * Contact data  The member list of the TCA Intranet shows the members name, city, country and email address to other registered members. Other data are visible to staff only.

      
    * Other sites - This Privacy Policy applies to web sites and services that are owned and operated by the Tarlov Cyst Association. We do not exercise control over the sites to which we provide links.  These other sites may place their own cookies or other files on your computer, collect data or solicit personal information from you.

Choices for personal information

When you sign up for a particular service that requires registration, we ask you to provide personal information. We will not collect or use your personal information for purposes other than those described in this Policy and/or in the specific service notices, unless we have obtained your prior consent.

You can decline to submit personal information to any of our services, in which case the Tarlov Cyst Association may not be able to provide those services to you.

Information sharing

The Tarlov Cyst Association will not share personal information with other organizations or individuals outside of the Tarlov Cyst Association, unless

    * We have your consent.
    * We have a good faith belief that access, use, preservation or disclosure of such information is reasonably necessary to (a) satisfy any applicable law, regulation, legal process or enforceable governmental request, (b) enforce applicable Terms of Use, including investigation of potential violations thereof, (c) detect, prevent, or otherwise address fraud, security or technical issues, or (d) protect against imminent harm to the rights, property or safety of the Tarlov Cyst Association, its users or the public as required or permitted by law.

If the Tarlov Cyst Association becomes involved in a merger, acquisition, or any form of sale of some or all of its assets, we will provide notice before personal information is transferred and becomes subject to a different privacy policy.

In addition to our medical surveys and forums for members, we may share with the public and third parties certain pieces of aggregated, non-personal information, such as the number of members who benefit from a type of treatment. Such information does not identify you individually.

Please contact us through the Contact Us menu item for any additional questions about the management or use of personal data.

Information security

We restrict access to personal information to the Tarlov Cyst Association employees, contractors and agents who need to know that information in order to operate, develop or improve the services. on our websites.  These individuals are bound by confidentiality obligations and may be subject to discipline, including termination and criminal prosecution, if they fail to meet these obligations.  Information collected to join the forum is not maintained on any internet server.  This information is maintained and viewed only by the owner.

Data integrity

The Tarlov Cyst Association processes personal information only for the purposes for which it was collected and in accordance with this Policy or any applicable service-specific privacy notice.  We depend on our users to update or correct their personal information whenever necessary.